Wednesday, November 3, 2010

We aren't really any closer to understanding what's causing Joey's symptoms, but I think they are about to give up and just send us home.  The heart rate could possibly be explained by coming off the steroids.  We don't have a good explanation for the rash or pain in his back.  It's not getting any worse, just staying the same, so I think we'll be able to go home and just watch it.  We're meeting with the doctors in the morning. 

We're really being tested in many different ways right now.  Some of you know that it all started back in March.  I was going to get my hair cut and I got a large dent in my 2-day-old windshield and then about 5-minutes later, I got a call from Jon that our new dog needed a $1,300 surgery.  I was very annoyed but had no idea that it was the start of one bad thing after another for the next 8 months. In hindsight, many of the things were not as bad as they seemed at the time, but they did cause a lot of stress.  Then they started getting worse.  We keep thinking that it has to be over, but then we get hit with something else.  I'm not really trying to complain; I've just never experienced anything like this before.  I'm not sure what to make of it. 

I pray for a day that we can look back at this as a time that we got to experience God in our lives like never before... that we remember this as our time of greatest growth and God's preparation for whatever he has for us.   

In the mean time... you may not want to stand too close to us :)


Brian said...
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Brian said...

If anyone has the right to complain, it's you. You've done everything right and bad things still happen.

If you haven't done so, I'd really recommend finding a therapist or support group where you can talk about what you're going through. The biggest mistake of my life was waiting so long to do so. I was angry at God, the world, everything for a long time. I couldn't understand how he could allow some of the things that happened happen. I couldn't understand why he'd take good people, young people, from the world. It was only through talking about it that I was able to slowly overcome those issues.

You cannot control what tomorrow brings any more than you can control the sun rising. Just try to stay positive and look on the good things.

It's been over a month since your son was diagnosed. You've made it over a month! That's a huge step. He's in remission. Children have an 80% cure rate for ALL. And that's just an average, it's actually even higher depending on the risk factor.

All you can do is be there for him. He's happy (that video of him laughing is probably the cutest thing in the world), he's loved and he has a relationship with the Lord, no matter what happens no one, no thing can take any of those things away. You and your family have provided that for him.

Desta said...

Diddo to everything Brian said! You absolutely have every right to complain!!! Never apologize for voicing what you are going through. Praying w/o ceasing!!!!!

Lisa said...

No cliche's or pat answers to offer. Just know you're loved.

Standing with you!!!!

Chuck and Karen Schlies said...

Our thoughts and prayers have been with you since we learned about Joey's leukemia from Dick and Gayla. We are happy to hear he is in remission!! We know you must feel frustrated with all the recent complications Joey is enduring, but just remember you have wonderful support in family, friends, and most important God.
We will continue to pray that things get better and Joey gets to come home soon!!!!!

Lucia said...

I was sent over here by Aid for Aidan. Just read through what you are going through and wow. ♥ to you are your family. Be strong!

Joey, hang in there kiddo! Keep laughing, it's what makes the world go 'round. NO matter what happens, always remember to smile. :)

Erin S. said...

Love you!

Leanne of Folk said...

I also saw your blog at Aid for Aidan. And also, will be praying for you all--for health, healing, and strength to get through everything. I can already see you are all so strong. And God is always faithful. <3 to you!!!

Sarah's Mama said...

I don't know you and I live across the country but I will stand shoulder to shoulder at your side cheering you on through your journey. If there is anything I can do...please do not hesitate to ask.

Anonymous said...

Came here through Aid for Aidan. Please know that your family is in my thoughts and in my prayers. Hugs to Joey--and to you!