Monday, December 5, 2011

Over the last 2 weeks or so, Joey has had more energy than I'm used to him having.  I actually asked his oncologist if the new medicine he just started can make kids hyper (you just never know) and he sort of laughed.  I'm wondering if Joey is just now starting to feel more like himself and the true ornery boy he is, is coming back out.

We're in the second week of 3 weeks of chemo.  Last week, he had the energy I mentioned above except for one day.  On Wednesday, he fell asleep at school at about 10am.  At 11:45, when it was time for more chemo and to get on the bus, they couldn't get him to wake up.  I think he really worried them.  After about 20 minutes, he finally woke up.  Dr. Rosen said it can be normal if they are really tired and you wake them up during just the right stage of sleep.

Today, we saw Dr. Rosen and had a spinal and port access for labs and Vincristine (the stronger chemo). While we were with Dr. Rosen and Kim (Mrs. Rosen and the nurse), he talked to them more then I've ever heard him talk to them before.  When Kim dropped off the vials of stuff that was going to be pushed through his port, he yelled "Am I getting all of that?!"  The spinal went smoothly. Once again, he didn't cry, but he did bite a chunk out of his squeezy boat.  We may run out of boats again if he keeps biting them that hard, but it's amazing how well it helps him get through it. He felt unusually well after the appointment.  He rested for about 2 hours and then the high energy was back.

Tonight, we had our December meeting with the Leukemia & Lymphoma Society support group.  We all boarded the Party Bus and drove around to look at Christmas lights.  It was a lot of fun - Joey spent most of the time bouncing around the bus.

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