Day #8

No chemo again today - just several other medicines, resting, and watching for fevers, etc. He spent some time in the playroom today and seems to be moving around better.

I went into work today to check in and talk about the plan going forward. I'll probably be changing my role at work a bit to make it easier for me to take care of Joey through this long process. I'm very blessed that my boss is so understanding and willing to work with me. If I had an inflexible job, this would be much harder. I'm going to start working again next week, although my location may be flexible.

Joey Skyped with his daycare class again. He got to watch circle time and see his monkey in his chair. We tried to stay busy this afternoon with books, coloring, DS, and toys, but he is really getting sick of being here.

Chad and Candice stayed with Joey tonight so Jon and I could go out with Katherine. She has gotten very little attention from us this past week and we thought she really needed it. We talked about Joey a little bit. She asked us who made Joey sick - God or the devil. These are things that are difficult for anyone to understand and are very hard to explain to a child.

His labs were stable today - not much different from today except he platelets are still dropping. He may need a platelet transfusion tomorrow. He'll be getting some chemo injected into his leg in the morning. As long as he doesn't have a reaction and everything else looks good, we should be going home in the late afternoon. Joey has already let us know that he'll be sleeping with us at home. I think it's going to be hard for him to be away from us after this.


Playing but grumpy


Watching a movie with Uncle Chad


Watching circle time at Tree House